When my dad was diagnosed with glioblastoma, my first reaction was grief. My second was panic. Not that he was sick and certainly going to die soon, in a lot of pain. But that he was going to be helpless and dependent on his wife. I have very few clear memories of my childhood, but I didn’t need them to know that dad was in for a bad time.
I called him as often as I figured I could without her punishing him for talking to me, and I wrote a lot of those conversations down. That had been a practice for a while by then whenever she cut me off to punish me for something and she hadn’t yet gotten around to making him cut me off too. If I didn’t, I knew, I’d never be able to believe later that they had happened. I had three separate text files on different devices that I would add to with one of those conversations shortly after they happened. They’re not all neatly collated and a lot of them are disjointed and fragmentary. I have cut and pasted one of those text files below, with some minor commentary where the conclusion to a particular scenario wasn’t known at the time. Some of the worst conversations are in the other text files, so this should be thought of as representative, overall, of what I’d heard and witnessed. As this particular situation unfolded I wrote down one or two of our very rare in-person visits as well.
It was a first-class education in the mechanics of denial on a small scale. What I want you to pay attention to is the nature of his responses when I introduce a fact, something true, into the narrative he’s been told to believe.
Moving
[before diagnosis, after divorce drama]
Dad: So we took the house off the market.
Me: (pause) Oh?
Dad: Yes. It was too much for your mother.
Me: I see?
Dad: Yes. Too much work. The cleaning and everything–she said she was too tired and it was too much and I wasn’t doing enough.
Me: (pause) I bet she did.
Dad: Yes. So we’ve taken it off the market and we’ll think about what to do next.
Me: Any thoughts?
Dad: Well, we like the M. house. It’s a nice house. It’s a lot of work though and I am really sick of gardening. (laugh)
Me: It certainly is. That garden is enormous.
Dad: Yes! It would be nice to move but we’ll stay here for now.
Me: Right.
Dad: Maybe we’ll try again next year.
Me: But … I mean, Mom isn’t going to be less tired, is she? So how will you …
Dad: Well, I’m going to tell her that next time she needs to be living somewhere else already so that she doesn’t have to worry about the cleaning and everything.
Me: Hmm.
[This was the last conversation I had with him for over a year, until he got sick, as she was punishing me again by cutting me off and again forced/manipulated him into doing the same. They only started talking to me again because he got sick–him because he was terrified and of course no one can talk about being terrified with mom, and her because she wanted me to come back and pretend she hadn’t been ignoring me for two years so I could do all the care for dad.]
~~~
Dad: My doctor said we could get a referral to a Kingston hospital if we wanted.
Me: (pause) Oh?
Dad: Yes. Apparently they have excellent cancer care there.
Me: I bet they do. Are you thinking of moving then?
Dad: We’re considering it. It’s just this house–you know, I can’t go anywhere because I can’t drive.
Me: I can see that.
Dad: The B. house, I can’t live in it because of the stairs. But everything is a short walk away. Maybe we could find a little bungalow in a town where we could walk to things.
Me: Right. But … are you up to moving?
Dad: Oh! Well … hmm. (pause)
Me: It’s a lot of work. And last time–
Dad: Mmm. Ah. (pause) No decisions yet.
~~~
Dad: Yes, and I think we are going to start seeing if we can find a little bungalow.
Me: That would be nice.
Dad: Something like yours. You know when your mother was saying she wanted a divorce, and I was starting to look around, I thought I might like a little house like yours.
Me: That would make sense. No stairs.
Dad: Absolutely. Stairs won’t work. We can’t do stairs. At least I can’t do stairs.
Me: But are you up for moving right now? It’s a lot of work.
Dad: Well, we are just talking about it right now.
~~~
Dad: Your mother still wants to move. We asked the doctor and he said, yes, he can make a referral for us in Kingston. So that’s good.
Me: Mm hmm.
Dad: So I’m fixing up the house. Getting the floors refinished, taking out the skylight, things like that.
Me: (pause) That sounds like a lot of hard work, considering?
Dad: Hmm. Yes. Thankfully the floor refinishers will move the furniture.
Me: Uh. Yes, that sounds like a good idea.
Dad: We’re fixing up the B. house, too. It’s a nice house but I can’t live in it. The stairs, you know.
Me: Yes, that does sound like it wouldn’t work.
Dad: Yes. Even if I get over this we’re going to get older and then we won’t be able to use the stairs.
Me: I agree.
Dad: And if I end up needing surgery again, then I can’t use the stairs! So.
Me: Right. Definitely.
Dad: Still nothing definite. We are just talking. But maybe a bungalow.
Me: That makes good sense.
~~~
Dad: We are downloading our furniture. Some things we just can’t move. Like the tractor…
Me: No you definitely won’t want a tractor. Could you sell it with the house?
Dad: Maybe! Maybe. We’ll see. And the desk.
Me: Oh yes, the desk.
Dad: We’re going to bring it over on Easter. I’m disassembling it now. It’s pretty heavy, even when you take it apart.
Me: Hmmm.
Dad: Yes. Do you have a burly friend to help with the moving?
Me: Not really, no. Lots of friends but I can’t say any in the “burly” category.
Dad: I didn’t think so. Ha! Can’t see Siobhan moving a big old antique desk.
Me: No, me either.
Dad: You know I don’t get the feeling you actually want the desk.
Me: Well–don’t get me wrong. It’s beautiful. It’s a lovely piece of furniture and I understand it’s important to the family. But it’s also big and we don’t really have a space for it here. Plus it’s not really practical for computers or things like that.
Dad: Oh!
Me: Yeah.
Dad: Well … I guess we could sell it.
Me: I have to say, I thought it you brought it over, I might just sell it.
Dad: Yes, we could sell it! And then give you the money. After all, it’s your desk!
Me: That might work.
Dad: It’s your desk! You should get the money! Yes! Let me ask your mother about that.
[Next I heard the desk–which was actually an aunt’s, though I’d never been told that–had been returned to its rightful owner. Which is a happy ending, for the desk and my aunt. But I’d never been told that was happening, until I got a thank you email from the aunt. Neither of my parents ever mentioned it again. Here’s the thing: mom took the desk to hurt my aunt; it was a nice piece of furniture and in her mind, everything nice should be hers, so I’m sure she didn’t even think of it as stealing. It was hardly ever used, and she kept it in a prominent location so visitors would see it, including aunt H. She was determined to call it ‘mine’ and give it to me, not to do something nice for me–I’ve made it clear the whole time I didn’t want it, but she enjoyed forcing me to accept things I didn’t want and making sure I said thank you and punishing me if I didn’t–but to hurt aunt H. To ensure she never got it back. And when she found out I truly just wasn’t going to be forced to accept one of her unwanted ‘gifts’ this time, instead of using me and the desk to hurt aunt H, she used aunt H and the desk to hurt me. And roped my dad into it, while he was terminally ill–and on chemotherapy–and doing all the work to move their house. She’s been using relationships as tools to hurt and punish her targets for as long as I’ve been alive. Shockingly to me, some of her targets just sit around wailing and waiting to be used and tossed aside again.]
[Oh–and I didn’t see them on Easter. Or hear from them on Easter. Apparently that plan was only convenient when it fit into her goals of hurting aunt H via her beloved desk.]
~~~
Dad: We’re getting the B. house ready to move in to.
Me: (pause) Oh?
Dad: Yes. It’s coming together. Slowly but surely.
Me: Hmm? So … have you given any thought to how you will manage the stairs?
Dad: Well, the back stairs are better than the front … umm, the front stairs … well, we’re going to go down for a week, and …
Me: (sigh)
~~~
After they moved into the B. house he “mysteriously” ended up with a wedge fracture in his spine, “probably from a fall.” He never walked again. He never stood up again. He spent his brief remaining time in a wheelchair.
Rescue Animals
Dad: Your mother told me she wants a divorce.
Me: Oh, Dad. I’m so sorry.
Dad: Well you know she hasn’t been happy in our marriage for a long time now.
Me: Yeah, I know.
Dad: Yes. And so, now she wants to separate.
Me: How are you doing?
Dad: Oh. (pause) I’m ok. I’m ok.
Me: What happened? Was there anything or…?
Dad: Well, you know your mother loves rescue animals.
Me: Yes. I had picked up on that.
Dad: Well she’s been wanting to get some rescue goats.
Me: Really?
Dad: Yes.
Me: There are rescue goats?
Dad: There are rescue everything.
Me: Hmm.
Dad: And I said, I don’t want to get rescue goats. We have five rescue dogs and I already spend a lot of time taking care of them and cleaning up after them, you know.
Me: I do know.
Dad: And I don’t have time or energy to take care of more. And I know she won’t do it. So I said I didn’t want rescue goats.
Me: Right.
Dad: And she said so she wants a divorce.
Me: (pause) Wow.
~~~
Dad: We got rescue chickens!
Me: Oh?
Dad: Yes! Last week! We picked them up!
Me: There are rescue chickens?
Dad: Yes! Laying hens, you know, when they slow down the farmers usually send them to be slaughtered for pet food.
Me: Right.
Dad: And your mother, you know her and rescue animals.
Me: I do.
Dad: Well so she wanted to get some rescue chickens. And here they are! We’ve made them a little coop.
Me: I see.
Dad: (laugh) They are pretty cute! And they do lay some eggs. Maybe I will be able to eat them. [my mother is vegan and would not allow my father to consume animal products after she converted. They both presented it as ‘his choice,’ but when the nurses brought him a roast beef meal in the hospital after his brain surgery, his response was to stare at it, and say, “oooooh … quick, help me cut it up so I can eat it before your mother gets back.” He actually laughed with joy as he ate it. In this context, I think having a supply of eggs she would allow him to eat probably did seem like a great treat.]
Me: That would be nice.
Side Effects
Dad: Well what happened, you know, I had to go to see the doctor by myself because your mom was very busy at work that day. And I got confused. I thought he said that when I have a headache I should take six pills but what he said is that I should take 6 mg–which is the same dose as always. One pill.
Me: So you were taking six times your dose?
Dad: Yes!
Me: Wow. So that’s …
Dad: That’s why they think I have blood clots now. I’m taking blood thinners for those.
Me: Right. And …
Dad: Needles! Of course you know all about that.
Me: I sure do. Dad, I really don’t like the idea of you going to those appointments by yourself.
Dad: Neither do I! But sometimes your mom can’t make it. It’s ok. The volunteers drive me down and pick me up.
Me: But still.
Dad: Your mom is quite angry at the doctor. She thinks he should have written it down. [Note: it was ALREADY written down because it was his ACTUAL PRESCRIPTION] I guess though I just should have been more focused.
Me: You have a brain tumour. I don’t think that’s a realistic expectation.
Dad: Still. You know. If I’d paid better attention.
Me: Dad, no. This is why you need someone with you, who can be a second set of ears. It’s not reasonable to ask yourself to function normally right now.
Dad: Well … I don’t want to be there by myself, but sometimes …
Me: You know if you tell me when your appointments are I am happy to be there with you. Just tell me.
Dad: Oh, umm … but now I’m on blood thinners. The clots will clear up.
~~~~~
Dad: The bruises are getting better.
[The bruises are livid and cover both of his forearms. The colour of port wine, each is angry and centred around a circular scab the size of a pencil eraser.]
Me: Really? They still look pretty bad.
Dad: Oh, they were much worse. Much worse. They were all like this before. [He points to one that is blood-coloured.] But they got me on the thinners and then they started getting better.
Me: So this is … related to the clotting, then?
Dad: That and the blood stuff … the … what are they, platelets!
Me: Oh, right. So that’s getting a bit better too, then?
Dad: Yes. Slowly. Now that they’ve changed the medications.
Mom, from the kitchen: It was the beet juice!
Dad: Oh, yes.
Mom, coming in to the room: Beet juice has micro-nutrients that encourage platelet formation.
Dad: Your mom has been making me drink beet juice.
Mom: And as soon as you did, that’s when the bruises went away.
Dad: It was the beet juice.
~~~~~
His cheeks are so swollen his face is round. His legs and arms are like toothpicks, but with a round belly, like a famine child. He berates himself for being “fat” and says he needs to eat less. He can’t, or doesn’t, make eye contact.
~~~~~
Dad: Really, though. I just should have been getting more exercise.
Me: What?
Dad: You know I spent the whole winter on my ass watching TV. It was not good. Not good! Your mom told me I should have been getting more exercise and she was right.
Me: You couldn’t walk, Dad. You were recovering from brain surgery and you weren’t allowed to use stairs. I don’t think it’s reasonable to ask yourself to get more exercise. Anyone would have spent the winter sitting down in that situation.
Dad: Well. But I spent the whole winter on my ass! Watching TV! Your mom said I should have been getting more exercise, and she was right!
Before dad got sick, I thought of my missing childhood, when I allowed myself to think of it at all, and all the illnesses and the angry doctor, and how my memories started and the illnesses stopped when mom started a full-time job, as a coincidence. That my suicidal depression and rage was probably an over-sensitive over-reaction to a mostly happy childhood, which was abusive sometimes but overall was probably better than most people’s, which I had willfully and perversely blocked out. That I might have issues, and they might have made some mistakes, but I should be mature, let it go, have a relationship with them, and not blame them.
The double-knowing of denial again: I knew it was terrible; I knew it was all my fault.
Then dad got sick.
Losing dad was hard, though not as hard as you probably imagine; I’d lost him so many times. Whenever mom got mad and cut me off, I lost him too, and never knew if or when I’d hear from him again.
I lost mom, though that wasn’t much of a loss, as you may have gathered; I lost my brother, or rather the possibility that the future might have made us closer. And over the next few years, other relatives. That was hard.
Harder was needing to take all of the narrative threads that bound my story of myself apart, such as they were; launder them, air them out, and stitch them back together in the context of what I witnessed. Actually watch, in real time, how denial could kill a person, through refusing to see or admit to what was happening in front of them and to them every day. Understand how thoroughly I had learned to believe a terrible story about myself, because I had been told it by people who had power over me and who I depended on.
You think this is exceptional. You think dad was a special case, something extraordinary.
No. We all rely on little denials to function in the world. And most of us accept the big denials; it can be easier to swallow the bad story about ourselves than to see the world or the people around us as bad in some way, because ourselves we can fix.
The little loops; the way he rewound a minute, repeated an earlier statement, when confronted with a fact or hard question he didn’t have an answer to, that might crack through in some way. The “forgetting.” The double-knowing of denial: you know enough to know what isn’t safe to acknowledge or pay attention to, so you can turn away when it pops into view.
For seven years after dad got sick and then died, I went over my own life, and picked apart every seam put together with a bad story, and let everything sit in a disorganized heap. I had no idea what was true. I didn’t know who my parents were, where I came from, what was real, who I was. All the advice-givers say that stories heal, so I’d try to sew it back together again, prematurely, in any way that seemed relatively coherent; but it wouldn’t work, and it all would fall apart again.
It didn’t matter to me anymore if it felt good, if it was soothing, if it made other people comfortable. It needed to be true.
Of course, this is wildly ambitious when you’re talking about second-hand information and recorded bits of dialogue from people with serious mental health issues who have been gaslighting each other for decades, and you have a wicked case of childhood amnesia. But within the context of these constraints, I wanted as much as possible to tell the truth. To have a story that hangs together and does not loop back or rewind a beat when a hard fact or question intrudes. To not paint over the empty spaces with something either prettier or uglier than is real, but lets the blanks be blank; and yet doesn’t add unnecessary blanks by refusing to look at what is in plain sight.
I may need to come back to this one. There’s a lot to say, and if you haven’t experienced it, it’s hard to believe it’s real; and if you have, you have likely been so conditioned to skip over or look away, that pointing out the loops and rewinds is like pointing out the ultraviolet portions of white flowers to human eyes. There’s nothing there. What are you talking about?
Perpetrators of gross atrocities and offenders against ordinary criminal codes invite the same set of questions: “Why did they do something like that?” Further, “How could they do it, but still believe in the rules they break?” Yet further, “How could they do such atrocious things, yet still think of themselves as good and decent people?”
…Offender and bystander denials belong to a wider category of speech acts known as ‘accounts,’ ‘motivational accounts’ or ‘vocabulary of motives.’ Motives, Wright Mills argued, are not mysterious internal states, but typical vocabularies with clear functions in particular social situations. They serve to realign people to groups whose norms and expectations they have confounded. There is no point in looking for deeper, ‘real’ motives behind these verbal accounts … verbal statements of motives are initial guides to behaviour. An account is not just another defence mechanism to deal with guilt, shame or other psychic conflict after an offence has been committed; it must, in some sense, be present before the act. That is … I must say to myself, “If I do this, what will I then be able to say to myself and others?” …
…Such internal soliloquies are not private matters. On the contrary: accounts are learnt by ordinary cultural transmission, and are drawn from a well-established, collectively available pool. An account is adopted because of its public acceptability. … The denials we see are those offered in the expectation that they will be accepted.
https://www.goodreads.com/book/show/208984.States_of_Denial
In other words, they’re lies.